December 31, 2008 — Christine Maggiore died unexpectedly on December 27, 2008, leaving behind her husband, Robin Scovill; their son, Charlie; and the memory of their daughter, Eliza Jane.

Christine was a beacon of hope for many people whose lives, like her own, had been turned upside-down by an HIV-positive diagnosis. When she received this devastating label in 1992, Christine — in spite of predictions that she had five years to live — did not give up, but devoted her life to helping others. For several years she was a public speaker for AIDS Project Los Angeles and L.A. Shanti Foundation and was a founding board member of Women At Risk.

It was in the process of trying to find a doctor that she felt comfortable dying with that Christine starting getting conflicting information from AIDS experts, particularly troubling in the search to save her own life. One doctor in particular suggested that Christine retest, and she finally did, testing HIV negative, positive and indeterminate over a dozen times in subsequent months. She was shocked. Christine took her questions and confusion to the very AIDS organizations that she was helping to build. Their unanimous dismissal of her inquiries forced her to look outward. This series of events profoundly shook her faith in mainstream AIDS beliefs and sent her down a rabbit hole of exploration that would challenge everything that she had been led to believe.

Over the subsequent years, Christine's research put her in touch with people all over the world whose work and commitment to open dialog and debate caused her to rethink everything she had been taught to teach others about HIV and AIDS. Most importantly, it led her to question the absolute assertion that an HIV-positive diagnosis meant she had to die.

In 1995, Christine set out to assemble a three-fold brochure outlining a series of facts that had been most compelling in her search for truth. That brochure turned into the first incarnation of her seminal book, What If Everything You Thought You Knew About AIDS Was Wrong? It took Christine years to unearth the many studies, writings and facts that began to alleviate the shame and terror of her HIV diagnosis. Her desire was to create something concise and informative and empowering that she could give to others who had received a similar diagnosis and who were ashamed and terrified and alone.

Christine's book — now in its fourth edition — has been translated into seven languages. Her monumental work with her nonprofit organization, Alive and Well AIDS Alternatives, has redefined what we think about AIDS. And her tireless communications, writings and Podcasts have touched thousands of lives around the world and continue to provide a beacon of hope for anyone who lives in fear of AIDS.

In spite of Christine's strength, she was also under tremendous pressure and scrutiny. She often felt that she wasn't allowed to get sick like other people. After her daughter died in 2005 of an allergic reaction to an antibiotic for an ear infection, the L.A. County Coroner — ignoring evidence to the contrary — declared it a death from AIDS, and Christine's suffering increased horribly. She was vilified in the world media and harassed by outspoken opponents of her work, who openly gloated that this was her just comeuppance. She and her family endured a yearlong criminal investigation that not only terrorized them, but also robbed them of an opportunity to mourn the loss of their daughter. That loss was twisted into sensationalized and mean-spirited television episodes that portrayed Christine as a quack and a murderer and ultimately as dead. Christine never fully recovered from the unjust treatment that she received around the loss of Eliza Jane, and that treatment ultimately exhausted her.

Christine Maggiore's death is a shock and devastating blow to her family and to the thousands of people around the world who loved and respected her.

For anyone who lives in fear of an HIV or AIDS diagnosis, Christine's legacy will live on. She was committed to sharing vital facts and essential dialog that would give HIV-positive people everywhere the chance to consider a destiny that differs from the one of death and despair that they are taught to expect. For that she was loved.

Christine will be deeply missed.

Statement of RA President David Crowe On the Passing of Christine Maggiore December 29, 2008 Calgary, Alberta, Canada Christine Maggiore was physically slight but emotionally very brave. Many people hide their HIV status and actions they might take based upon rejecting its meaning, but Christine was always up-front, open and honest. She talked publicly about having two babies without AZT, about having natural births, and about breastfeeding her children, knowing that authorities might come after her. But Christine's strength was tried horribly in 2005 when her daughter Eliza Jane (EJ) died shortly after taking the penicillin-like antibiotic amoxicillin for the first time. The death of a child is any parent's worst nightmare, and EJ's death was worsened by the people who blamed Christine for it. Her loss never ceased to be a great struggle for her. Recently, though, she had regained much of her positiveness, joy of life and sense of humor. The new Podcast "How Positive Are You" had become a new outlet for her creativity and inquisitiveness, as had a new job assisting families embroiled in bitter divorces. Christine always realized that, even for people who rejected their diagnosis, society would not, and that the outside world would try to make them live lives controlled by lab tests, numbers, the timing of the next pill, and the threat of legal consequences if they refused to conform. Christine's most courageous work was among the many mothers who came to her terrified that they had to choose between highly toxic drugs for themselves and their baby or the loss of their child to authorities. Because of the confidentiality of these encounters, nobody knows how many mothers and babies were saved because of her. Christine inspired the love of her life, filmmaker Robin Scovill, to share her concerns about HIV/AIDS. Robin made two films on the subject: Questioning AIDS in South Africa and the award-winning The Other Side of AIDS. Christine's death is a blow to the thousands of people around the world who loved and respected her. She would want people never to give up hope and never to stop asking questions, whether about HIV/AIDS or about anything else that “everyone” knows but nobody can prove. The movement of which she was such a critical part can best remember her by carrying on her work.